Adolescents Needed for Nonepileptic Seizures Study
W
Wendy Miller
Primary Investigator
A
Andrea Tanner
Primary Investigator
Overview
Are you the parent/guardian of a child 10-17 years of age who has a diagnosis of PNES, NES, FND, or functional seizures?
We are inviting parents and guardians of adolescents who are diagnosed with nonepileptic seizures/functional neurological disorder to take part in this study.
Description
What Will Happen During Study Participation
- First, parents will be asked to answer survey questions on their phone, tablet, or computer (approx. 15 minutes).
- Second, adolescents will receive a link to the survey and be asked to answer survey questions (multiple choice and a few open-ended) on their phone, tablet, or computer (approx 45 minutes).
- A paper-pencil version is also available and can be mailed to your home if needed.
Incentive/Compensation
- Parents will receive a $10 gift card and children/teens will receive a $25 gift card for completing the survey
If you are unsure if you are right for this study, or have questions, please contact Andrea Tanner, PHD, RN, NCSN:
Email: andrtann@iu.edu
Phone: (317) 278-3643
Additional Info:
Study Title: Managing Adolescent Seizures Survey (MASS)
Eligibility
You may be eligible for this study if you meet the following criteria:
-
Conditions:
healthy volunteer,seizure disorders
-
Age: Between 10 Years - 17 Years
-
Gender: All
Inclusion Criteria:
- A parent/guardian of an adolescent diagnosed with nonepileptic seizures (also known as psychogenic nonepileptic seizures, functional neurological disorder, or nonepileptic attack disorder)
- Your adolescent is 10-17 years old
- Your adolescent attended school while having this diagnosis
- Your adolescent had a seizure/event in the last three months
- You and your adolescent are able to speak and read English
Exclusion Criteria:
- Lack of caregiver consent or adolescent assent
Updated on
25 Apr 2024.
Study ID: 14156
