Improving the Quality of Care for Adults With Inflammatory Bowel Disease (IBD:QORUS)

S
Sashidhar Sagi, MD

Primary Investigator

Enrolling By Invitation
18 years and older
All
Phase N/A
10000 participants needed
2 Locations

Brief description of study

Innovative programs exist that suggest that care for people with chronic conditions iszed when patients and providers have the information they need at the point of care andver time, to engage in shared planning and execution of treatment goals and care plans. Thisject aims to build an Inflammatory Bowel Disease Learning Health System, a sharedvironment, that highlights collaboration among patients, clinicians and carebers, and researchers; for effective use of data for guiding care, value,vement, and research.

Detailed description of study

To demonstrate the impact of an Adult Inflammatory Bowel Disease (IBD) Learning Health Systemh the study collaborators will design, build, implement, and evaluate in up to 90 IBDhe the following four key components of the IBD Learning Health System: 1) a Health Information Technology (HIT) environment that can "feed-forward" PROs and clinical data to be used at the point of care and integrated into a registry (IBD Plexus); 2) decision-support dashboards for use by patients and clinicians in real time to coproduce; 3) meaningful reports for patients and clinicians; and 4) multi-stakeholderborative networks for improvement and research.
Prior work from Sweden and the US show that successful uptake of the model can offerbenefits. Patients will be able to use web-based tools to monitor their health andge their care, securely share data with clinicians in a timely manner, visualize outcomeshat matter to them, and compare their results to other people. Clinicians will have newhat can improve their ability to track patient outcomes and costs over time; use PRO data to support pre-visit planning, shared decision-making at the point of care, andvisit monitoring; and receive comparative performance reports to support qualityvement, public reporting, and professional development. Researchers will benefit by having PROs and cost data added to data registries to support clinical, translational, andve effectiveness research.

Eligibility of study

You may be eligible for this study if you meet the following criteria:

  • Conditions: Crohn's Disease, Ulcerative Colitis, Inflammatory Bowel Diseases
  • Age: 18 Years
  • Gender: All

Inclusion Criteria:
  • 18 years of age or older
  • Diagnosis of Crohn's disease or ulcerative colitis or IBD unclassified
  • Accept the terms and conditions of Informed Consent and Authorization
  • Affiliated with a participating IBD Qorus site
Exclusion Criteria:
  • Inability to provide informed consent
  • Study key personnel cannot enroll as a study participant

Updated on 01 Aug 2024. Study ID: OSP#510516 D16124
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