Books 4 Brains Book Club and Community Circle (15991 Sub-Study: Exploratory Aim)
S
Scott Coven
Primary Investigator
Enrolling By Invitation
6-15 years
All
Phase
N/A
20 participants needed
1 Location
Brief description of study
What is the purpose of this study?
This research study aims to to increase access and engagement with books for patients diagnosed with brain cancer.
This study involves participating hybrid of in-person and virtual workshops.
THIS STUDY IS ENROLLING BY INVITATION ONLY - Consistent with most oncology trials, patients are not actively “recruited,” but are screened by their physician for appropriate clinical trial(s) at the time of their routine clinic visit. Occasionally, a patient may be a self-referral or physician referral, but are still screened for appropriate clinical trials at the time of their routine clinic visit. PI and staff may send copies of relevant consent forms to these patients to look over prior to actually consenting or enrolling them. This may take place at the patient's visit at which the consent is presented or the patient's next visit to the outpatient hematology/oncology clinic.
Interested in participating? For more information about this research study or other cancer-related clinical trials at IU Simon Comprehensive Cancer Center, please contact:
IU Clinical Trials Office
Email: iutrials@iu.edu
Phone: (317) 278-5632
Detailed description of study
What Happens During Study Participation
- You will be asked to participate in an in-person or virtual workshop.
- Activities for the workshop can include group discussion, creative writing, reading, and listening.
- Each session should last about 1.5 hours.
We may also ask for demographics like your age, gender, race, ethnicity, household income, information about the brain cancer diagnosis, and zip code. You do not have to answer any or all of the questions. We will use this information for publications, presentations, and analysis and your identity will not be shared.
Eligibility of study
You may be eligible for this study if you meet the following criteria:
- Conditions: Brain Cancer, Riley
-
Age: Between 6 Years - 15 Years
-
Gender: All
Inclusion Criteria:
- Patients ages 6-15 diagnosed with brain cancer
- Parents/Legal Guardian/Care Giver of patients diagnosed with brain cancer under age 18
- English speaking, literacy, and writing are required because all activities will be conducted in English
- Access to internet, a computer or other device with camera for any activities that are online
Exclusion Criteria
- Non-diagnosis of brain cancer
- No access to required technologies and devices for online video activities
- Non-English speaking/reading/writing
Updated on
12 Sep 2024.
Study ID: PHO-ILT-15991-SUB-STUDY, 19220
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