Single Ventricle Risk Stratification and Outcomes (SVO)
S
Stephanie Ware, MD
Primary Investigator
Enrolling By Invitation
5 years and younger
All
Phase
N/A
1 participants needed
1 Location
Brief description of study
This study may help link heart problems, or genetic defects, and physical features for certain heart defects.
Detailed description of study
Study participation includes two evaluations with a geneticist or genetic counselor. Blood may be drawn at each evaluation. Photography will be taken at each evaluation. Each evaluation will take approximately one hour.
Eligibility of study
You may be eligible for this study if you meet the following criteria:
- Conditions: single ventricle defect, Riley
-
Age: - 5 Years
-
Gender: All
Inclusion Criteria:
- Subjects must have a ‘single ventricle’ defect (such as but not limited to HLHS, DORV, PA/IVS, etc.). Subject with heart transplants may be enrolled as long as they were classified as a single ventricle prior to their transplant.
Exclusion Criteria:
Updated on
23 Sep 2024.
Study ID: 14006, PGNB-IIR-SVO
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