GRNDaD

S
Seethal Jacob, MD

Primary Investigator

Enrolling By Invitation
12 years - 26 years
All
Phase N/A
5000 participants needed
2 Locations

Brief description of study

The primary objective of this research is to create a multi-site registry to collect longitudinal data on a well-documented phenotypic cohort of people with sickle cell disease (SCD) in order to examine risk factors for end organ disease and better understand how clinical characteristics predict outcomes.

Detailed description of study

Develop a repository for the long-term storage of patient samples (whole blood, peripheral blood, serum) along with corresponding demographic and clinical information to allow for clinical and laboratory correlations.

Eligibility of study

You may be eligible for this study if you meet the following criteria:

  • Conditions: Sickle Cell Disease, Riley
  • Age: 12 years - 26 years
  • Gender: All

Inclusion Criteria:
  •  Documented diagnosis of sickle cell disease (HbSS, HbS-βthalassemia [HbSβ0 and HbSβ+thalassemia], HbSC or HbS-Variant, including HbSD and HbSE).
Exclusion Criteria:
Per the Principal Investigator’s discretion, the subject’s participation precludes their safety or the subject’s participation may confound the evaluation of the study outcome.

Updated on 13 Sep 2024. Study ID: 12449, PHO-JHOPKINS-GRNDAD
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Interested in the study?

This study is accepting only persons who receive care at a certain clinic or doctor or who are part of an invited group. Questions about this study can be directed to the study team listed in the description or contact your doctor to see if you are eligible.

Accepting Referrals by Invitation Only