GRNDaD
S
Seethal Jacob, MD
Primary Investigator
Enrolling By Invitation
12-26 years
All
Phase
N/A
5000 participants needed
2 Locations
Brief description of study
The primary objective of
this research is to create a multi-site registry to collect longitudinal data
on a well-documented phenotypic cohort of people with sickle cell disease (SCD)
in order to examine risk factors for end organ disease and better understand
how clinical characteristics predict outcomes.
Detailed description of study
Develop a repository for the long-term storage of patient samples (whole blood, peripheral blood, serum) along with corresponding demographic and clinical information to allow for clinical and laboratory correlations.
Eligibility of study
You may be eligible for this study if you meet the following criteria:
- Conditions: Sickle Cell Disease, Riley
-
Age: Between 12 Years - 26 Years
-
Gender: All
Inclusion Criteria:
- Documented diagnosis of sickle cell disease (HbSS, HbS-βthalassemia [HbSβ0 and HbSβ+thalassemia], HbSC or HbS-Variant, including HbSD and HbSE).
Exclusion Criteria:
Per the Principal Investigator’s discretion, the subject’s participation precludes their safety or the subject’s participation may confound the evaluation of the study outcome.
Updated on
13 Sep 2024.
Study ID: 12449, PHO-JHOPKINS-GRNDAD
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