The Biobanking in Indiana Public Deliberation Project

P
Peter Schwartz, MD

Primary Investigator

The Biobanking in Indiana Public Deliberation Project
Not Recruiting
18 years - 100 years
All
Phase N/A
32 participants needed
1 Location

Brief description of study

Did you know that each week, around 100 of your fellow Hoosiers give a vial of blood to help medical researchers?

This blood is kept by the Indiana Biobank, a project that is designed to help provide researchers across the state - and even across the nation - with biological samples that they can then use to develop new medicines, better understand diseases, and improve patient care. To date, more than 50,000 people have provided blood samples, and the goal is to collect many more over the coming years.​

Biobanks need the public’s input on some important issues ranging from figuring how much information biobanks should be gathering about donors to what types of research biobanks should support.

We are inviting people from across the state to participate in a project called “The Biobanking in Indiana Public Deliberation.” It is a research study at the Indiana Clinical and Translational Sciences Institute (CTSI), a research collaborative between Indiana University, Purdue University and the University of Notre Dame.  ​

The project will take place over two weekends during which time participants will learn about the issues, share their perspectives on them, and work together to make recommendations for biobank policy and guidelines.​

We are not expecting you to have any specialized knowledge about biobanks or research. Instead, you will learn everything you need to know to contribute with the other participants. Your perspectives and life experiences matter – not your expertise!​

Detailed description of study

How will you be compensated?
  • Participants will receive $125 for each day attended for a total of $500 (choice of gift card or IU issued check)
  • Travel or mileage expenses will be reimbursement
  • Hotel accommodations covered for participants living more than an hour away 
  • Breakfast, lunch, and refreshment breaks throughout each day.
Who Can Participate?
Participants will be selected from all the people who contact our office to let us know that they are interested. Participants also need to:
  • be at least 18 years old
  • speak and read English
  • belong to a household that received an invitation
  • be able to attend the entire event
Thirty-Two (32) participants will be selected, and an effort will be made to ensure thathe group matches the diversity of Indiana.

When and Where is This Event?
DATE: April 20-21 and May 4-5, 2024
Time: 9:00am-4:30pm
Location: Health Information and Translational Sciences Building (IUPUI-HITS),410 W. 10th St., Indianapolis, IN 46202


Additional information
Study title:  Public Deliberation to Improve Biobanking in Indiana

The study is being conducted by Dr. Peter H. Schwartz, MD, PhD, Professor of Medicine at the Indiana University School of Medicine, and Director of the IU Center for Bioethics. It is funded by National Institutes of Health/ National Center for Advancing Translational Sciences.

To learn more about Dr. Peter Schwartz and his research interests, please visit these links:

Eligibility of study

You may be eligible for this study if you meet the following criteria:

  • Conditions: all
  • Age: 18 years - 100 years
  • Gender: All

Participants also need to:
  • Speak and read in English
  • Belong to a household that received an invitation to participate
  • Be able to attend the entire 4-day (two weekends) event in Indianapolis, IN

    Updated on 01 Aug 2024. Study ID: 17846

    Interested in the study?

    Select a study center that’s convenient for you, and get in touch with the study team.

    Contact a study center