Parenting infants and toddlers through HSCT: A qualitative examination of parents' experiences
E
Elizabeth Harman
Primary Investigator
Enrolling By Invitation
3 years or below
All
Phase
N/A
3 participants needed
1 Location
Brief description of study
What is the purpose of this study?
The purpose of this study is to better understand how parents of infants and young children (3 years of age and under) experience the stem cell transplant process. More specifically, we want to understand if and how stem cell transplant impacts parenting so that supportive interventions can be tailored to the unique needs of parents of infants and young children undergoing stem cell transplantation.
THIS STUDY IS ENROLLING BY INVITATION ONLY - Consistent with most oncology trials, patients are not actively “recruited,” but are screened by their physician for appropriate clinical trial(s) at the time of their routine clinic visit. Occasionally, a patient may be a self-referral or physician referral, but are still screened for appropriate clinical trials at the time of their routine clinic visit. PI and staff may send copies of relevant consent forms to these patients to look over prior to actually consenting or enrolling them. This may take place at the patient's visit at which the consent is presented or the patient's next visit to the outpatient hematology/oncology clinic.
Interested in participating? For more information about this research study or other cancer-related clinical trials at IU Simon Comprehensive Cancer Center, please contact:
IU Clinical Trials Office
Email: iutrials@iu.edu
Phone: (317) 278-5632
Detailed description of study
What will happen during the study?
Data for this study will include semi-structured interviews and a basic demographic questionnaire, with all data collected during a single interview. A follow-call may take place if information needs to be further explained or clarified. An additional optional phone call may occur for member checking (participant review and response to initial findings) post-analysis.
Eligibility of study
You may be eligible for this study if you meet the following criteria:
- Conditions: Cancer, Hematopoietic stem-cell transplantation, HSCT
-
Age: 3 years or below
-
Gender: All
Inclusion Criteria:
- The parent or primary caregiver is 18 years of age or older and has a child that received an HSCT (any type on any treatment protocol at any hospital) within the last year
- Their child was 3 years of age or younger at the time of transplant (day 0)
Updated on
18 Feb 2025.
Study ID: PHO-IIR-HSCT, NURS-CC-IUSCCC-0901, 23098
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