Adult life for individuals with Down syndrome

Overview

The purpose of this study is to explore the current experiences and quality of life for adults with Down syndrome as perceived by themselves, their family members, and direct support professionals.

Description

The purpose of this study is to explore the current experiences and quality of life for adults with Down syndrome as perceived by themselves, their family members, and direct support professionals.

Eligibility

You may be eligible for this study if you meet the following criteria:

  • Conditions: Down syndrome
  • Age: Between 18 Years - 100 Years
  • Gender: Male or Female

Inclusion Criteria
The target population for this study will be adults with Down syndrome, their family members, and direct support professionals who work with adults with Down syndrome.
identified with Down syndrome
willing and able to participate in a focus group and in-home interview
family members of an adult with Down syndrome
caregivers who work regularly with adults with Down syndrome
Exclusion Criteria
Individuals who are nonverbal


Additional Information:
Participants will not be paid for their participation.

Updated on 20 Nov 2022 . Study ID: TX8730

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What happens next?
  • You can expect the study team to contact you via email or phone in the next few days.
  • Sign up as volunteer  to help accelerate the development of new treatments and to get notified about similar trials.

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