Cancer Worry in Patients with Hereditary Cancer Syndromes
Nawal Kassem
Primary Investigator
Brief description of study
What is the purpose of this study?
The purpose of this study to understand how patients cope with a hereditary cancer diagnosis, and what factors affect, either positively or negatively, the patient’s ability to cope with their diagnosis.
Detailed description of study
What will happen during the study?
This is a cross-sectional study focused on patients with hereditary cancer syndrome. All patients seen in medical genetics clinic, high risk clinics, oncology clinics, surgery clinics, or gynecology, and gynecology/oncology clinics who carry a diagnosis of a hereditary cancer syndrome will be eligible for the study.
After they are enrolled, participants will be asked to complete one study questionnaire. Estimated time for completion is 30-60 minutes. They will be offered iPads to complete the questionnaires via REDCap after their clinical visit, or they may complete the study questionnaires via email, if they prefer.
Eligibility of study
You may be eligible for this study if you meet the following criteria:
- Conditions: Hereditary cancer syndrome
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Age: 18 years - 100 years
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Gender: All
Inclusion criteria:
1. Age 18 years old or older at time of informed consent
2. Ability to provide informed consent
3. Diagnosis of a hereditary cancer syndrome
