Project ADAM: Long-Term Outcomes

A
Adam Kean, MD

Primary Investigator

Enrolling By Invitation
99 years or below
All
Phase N/A
12 participants needed
1 Location

Brief description of study

The purpose is to establish a database of SCA (Sudden Cardiac Arrest) victims to better characterize the predisposing factors, causes, emergency response, diagnoses, procedures, and long-term outcomes surrounding this life-threatening emergency. Expanding to a national scope rather than isolated communities or regional areas, will change the way we view SCA as we seek to improve community preparation, emergency medical treatment, hospital protocols and relative screening to save lives.

THIS STUDY IS ENROLLING BY INVITATION ONLY - We will use the EMR system to receive a report of patients who had a sudden cardiac arrest and confirm that an AED was used. After eligibility is confirmed, we will look at patient's demographic information and appointments scheduled in order to contact patient to explain study.

Detailed description of study

The experimental design of this project is comprehensive and is primarily a prospective database registry of sudden cardiac arrest (SCA) victims with the addition of retrospective data on the prior SCA victims that have been already tracked through Project ADAM’s various affiliated children’s hospitals. 

Project ADAM has focused on emergency treatment and preparation for sudden cardiac arrest (SCA) for more than 20 years. As it has grown to incorporate 44 affiliates (Children's hospitals) across 32 states representing more than 5000 participating schools & community centers (with ongoing expansion) and more than 200 lives saved through this program, Project ADAM is uniquely poised to establish the premiere database of pediatric SCA. Our goal is to establish a prospective database, including retrospective data from subjects who are currently being followed clinically and 2 subsets of retrospective data from subjects who have been lost to follow-up.

Eligibility of study

You may be eligible for this study if you meet the following criteria:

  • Conditions: Sudden cardiac arrest, SCA, Riley
  • Age: 99 years or below
  • Gender: All

Inclusion criteria:

- Had an SCA (Sudden Cardiac Arrest)
- Required CPR or AED used in resuscitation
- Ages 0-99

Updated on 06 Aug 2025. Study ID: PCTR-UNMC-ADAM, 25170
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Interested in the study?

This study is accepting only persons who receive care at a certain clinic or doctor or who are part of an invited group. Questions about this study can be directed to the study team listed in the description or contact your doctor to see if you are eligible.

Accepting Referrals by Invitation Only