Evaluating Financial Barriers to Breast Cancer Patients Participating in Clinical Trials
Understanding Money Issues for Breast Cancer Patients in Clinical Trials
Kathy Miller, MD
Primary Investigator
Brief description of study
The purpose of this study is to understand the indirect costs (i.e., lost income, travel costs, parking costs, etc.) taken on by breast cancer patients who have enrolled in cancer clinical trials.
Interested in participating? For more information about this research study or other cancer-related clinical trials at IU Simon Comprehensive Cancer Center, please contact:
Detailed description of study
Patients will be recruited on a prospective basis during their in-person visit to the outpatient Oncology Clinic at Indiana University Simon Comprehensive Cancer Center (IUSCCC). With permission from the clinic physician, a trained and authorized member of the study will screen via the electronic medical record (EMR) all patients who will be presenting in clinic visit by utilizing the inclusion criteria.
Participants will complete a one-time paper survey asking about demographics (age, sex, etc.), cancer stage and diagnosis, previous cancer treatment, and financial information. The survey should take approximately 10-15 minutes.
Eligibility of study
You may be eligible for this study if you meet the following criteria:
- Conditions: Breast Cancer
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Age: 18 years - 100 years
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Gender: All
Inclusion criteria
1. ≥ 18 years old at the time of consent and survey & able to provide verbal informed consent.
2. Any histology and any stage breast cancer.
3. Has enrolled in and completed at least one treatment visit on a breast cancer clinical trial through the IUSCCC Clinical Trials Office within the past 18 months.
4. Able to read and write in English.
5. No mental disability which would preclude completion of survey, as determined by treating physician.
This study investigates the financial barriers faced by breast cancer patients who participate in clinical trials. Breast cancer is a disease where cells in the breast grow uncontrollably. This study looks at costs like lost income, travel, and parking for patients enrolled in these trials.
Participants will complete a one-time paper survey, which will ask questions about their age, gender, cancer stage, previous treatments, and financial details. The survey will take about 10-15 minutes to complete.
- Who can participate: Adults 18 years or older with any stage of breast cancer who have participated in a clinical trial at the IUSCCC in the past 18 months are eligible. Participants must be able to read and write in English and have no mental disabilities that would prevent survey completion.
- Study details: Participants will be asked to complete a paper survey during their visit to the oncology clinic. The survey will gather information about their demographics, cancer history, and financial details related to trial participation.
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