Pediatric Diabetes Clinical Research Advisory Board
Study on Diabetes Feedback
Tamara Hannon, MD
Primary Investigator
Brief description of study
The purpose of the IU Pediatric Diabetes Clinical Research Advisory Board is to gather current Riley Diabetes Patients 15 years and older to provide feedback on: ideas for upcoming research, results of current research, written materials and other feedback based on lived experience with diabetes. Participants will engage in quarterly meetings or as needed to provide feedback.
Detailed description of study
We will establish a Pediatric Diabetes Clinical Research Advisory Board to receive feedback on how diabetes research is conducted, how to share research findings, and sharing experiences on diabetes diagnosis and management along with other lived experiences. The rationale for our partnership is to share ideas and feedback to better serve teens living with diabetes as researchers and healthcare providers. By doing so, we believe that equitable and inclusive practices can be developed, implemented and disseminated.
We will convene quarterly board meetings. Data collected from advisory panel meetings will include audio and video recordings (TEAMs or zoom), field notes, and transcriptions.
Topics might include: -Sharing experiences with diabetes diagnosis and management and other lived experiences. The study research team may ask board members for their thoughts on: - What data we collect for diabetes research -How studies on diabetes are conducted -How to recruit participants and what may make families more likely to join research -How to understand and share research findings -Discussion of patients' with diabetes priorities and how these might affect our research study and future studies.
Eligibility of study
You may be eligible for this study if you meet the following criteria:
- Conditions: Diabetes
-
Age: 15 years - 17 years
-
Gender: All
Inclusion criteria:
- Diagnosis of diabetes
- Who clinical receive care from Riley Diabetes (Riley Specialist Care at IU Health Riley Hospital, Methodist Hospital, IU North, Bloomington, Fort Wayne, South Bend)
The purpose of this study is to gather feedback from current diabetes patients who are 15 years and older. This study investigates how patients can provide input on research ideas, results, and materials related to diabetes. The study will help researchers and healthcare providers understand the needs and experiences of teens living with diabetes.
Participants will take part in quarterly meetings where they will share their experiences with diabetes diagnosis and management. The study will collect data from these meetings using audio and video recordings, field notes, and transcriptions. Topics discussed may include how diabetes research is conducted, what data is collected, and how research findings are shared.
- Who can participate: Participants must be 15 years or older and have a diagnosis of diabetes. They must receive care from Riley Diabetes at specific locations.
- Study details: Participants will attend quarterly meetings to provide feedback on diabetes research. They will share their experiences and discuss various topics related to diabetes.
Interested in the study?
This study is accepting only persons who receive care at a certain clinic or doctor or who are part of an invited group. Questions about this study can be directed to the study team listed in the description or contact your doctor to see if you are eligible.
Please choose between Voice or SMS based delivery of verification code
or