A listing of iu-health-enterprise-system medical research trials actively recruiting patient volunteers. Search for closest city to find more detailed information on a research study in your area.
What is this study about?The goal of this registry is to assess clinical outcomes in patients with Pompe disease, including patients with LOPD or IOPD, regardless of current or previous therapy. The use of real-world data for this registry will enable the evaluation of the long-term safety and effectiveness of …
The goal of this study is to learn about prediction of sudden death in children and adolescents with hypertrophic cardiomyopathy. We are hoping to find out if the use of genetic results and heart imaging will improve the ability to assess risk of sudden death in children.
What is the purpose of this study?The purpose of this study is to create models out of tissue samples and treat those models with the same immunotherapy treatment the patient will be receiving, in order to validatehis process and to predict responses to therapies and use it to choose the …
This is an observational prospective study and a retrospective study. For the prospective study, the clinical data and blood sample will be collected in accordance with standard procedure currently used in patient care at our institutions. For the retrospective study, patients requiring acute dialysis in the pediatric ICU and CVICU …
This proposal will expand on our current work with the SRC/IRB approved project (IRB: #15991 Assessing Household Material Hardship in Children with Central Nervous System (CNS) Tumors). This new population can serve as a comparison, with children admitted to the hospital for infectious diseases and requiring long hospital stays and/or …
In this prospective and longitudinal natural history study, the aim is to identify variables that affect long-term outcomes following potentially life-saving Definitive Therapy (DT), which includes either 1) allogeneic hematopoietic cell transplant (HCT), or 2) autologous gene therapy (GT).
We propose to study cells obtained from the upper nose in patients with clinically diagnosed Alzheimer Disease or related dementia, and amyotrophic lateral sclerosis. There is evidence that cells from the nose may show changes associated to these neurological illnesses. The study of cells from normal subjects is necessary for …
What is the purpose of this study?Engage with children via formal interview who received a diagnosis of cancer, and who have had a formal Oncofertility consult to understand the experience and perceptions related to both family-centered and provider-focused fertility conversations, as well as improvements Oncofertility team could make that affects …
This study investigates a device designed to monitor pressure inside the skull of neonates and infants who are at risk of developing hydrocephalus, which is a condition where there is a build-up of fluid and pressure in the brain. The device measures changes in the anterior fontanelle, also known as …